Living with Trisomy 13 - Trisomy13 LIFE - Treasured Memory

TherseAnn - posted on 10/11/2015 ( no moms have responded yet )




Hello Folks,
My daughter surprised us at birth, was taken right to the NICU and was given some oxygen. She is now 15 yrs. old. There is a wealth of online support for Trisomy Expectant Parents.
I want to invite you all to Register with SOFT Support Organization for Trisomy 18, 13 and Related Disorders. They have a wonderful website full of helpful information. Be sure to look at the websites HOME page to get familiar with all they offer in support. SOFT has a facebook member group and Public facebook page.
SOFT has a wonderful library of Trisomy 13 Family stories, slideshows and videos on their website. March is Trisomy Awareness Month, they also have some trisomy awareness products.
JOIN with other families at the SOFT facebook group

There are also two facebook member groups I help Admin.
Trisomy13LIFE for the daily life support for expectant parents and those with survivors.
Also the Treasured Memory Support for those who carried to term.
Here is the link to the Trisomy13LIFE public Page

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