milk allergy?

User - posted on 01/05/2009 ( 30 moms have responded )

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anyone else out there with a baby who has trouble breaking down milk protiens and has to use elecare formula?

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Natalie - posted on 01/05/2009

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My daughter Clara, who is know 3 1/2. Was very similar to A LOT of kids/ babies that you guys are talking about. We switched her formula 6 times in the 10mths that she was on it and added oatmeal to it to thicken it.. which actually helped. Due to what they were calling GERD. She was on a milk based formula, which is also a hypoallergic formula.... Nutramigen Lipil made by enfamil... It cost about twice the amount of a normal formula but MOST insurance companies will cover it due to it being used to treat GERD.. also if you qualify for WIC they will cover it. At the age of 10 mths they switched my daughter to milk... which caused even more problems with her... she ALWAYS had a runny nose/fever and cough!! I was then referred to an Allergist at the Children's Hospital from the University of Missouri in Columbia.... they took out her Adnoids and put tubes in her ears.. while this was being done they drew blood... and found out from that simple blood draw that she is ALLERGIC to Cow MILK and CHICKEN EGGS.... but she can have soy milk. So we have to INFORM EVERYONE... of her allergies... my only advice for the parents out there is that your baby is not able to talk and tell you what is going on... the Dr that you take them too can only rely on what you tell them so TAKE NOTES... what you feed them how long it took them to get "sick" what happened.. how long was it after they got ate that they got sick... etc

[deleted account]

My son (now 22 months) had a milk protein allergy. He was put on Alimentum by Similac (same as Nutramagin (?sp) by Enfamil). He was on that for over a year and we were able to wean him to regular milk by 18 months. It was a long road. He was seen by an allergist who helped us through the whole process. He has outgrown it totally now at 22 months, however we went through a lot to get to this point.

Elizabeth - posted on 01/07/2009

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Neocate is what our baby is on too.  Very Very expensive, around 40 dollars a can but it is mostly for kids with short guts, or SBS.  Mostly fat  alabsorbtion problems.  To order go to orderneocate.com  Enfamil makes something similar which might work called Pregestimil which is sometimes found at the grocery store and is only around twenty-six dollars a can.  Good Luck! 

Elizabeth - posted on 01/06/2009

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My daughter has a milk protein allergy as well. She was strictly breastfed but I started seeing blood in her stool and she was spitting up a lot. She also became very fussy and I was unable to leave her for long periods of time- not even with my husband. Once I took her to her dr. they recommended she see a specialist. I tried to change my diet to dairy and soy free but nothing seemed to be working and there was still traces of blood in her stool. The specialist we took her to put her on Neocate- which is the equiv. of ellacare....just a different brand. These formulas are more expensive because they are broken down for the baby and can not be bought over the counter.



 She is 5 months old now and they say that she should grow out of her allergy. I have also noticed a change in her personality...back to the happy go lucky girl she first was. She is sleeping better at night, no more blood in stools, no more straining when pooping and way less spit up & gas.

[deleted account]

My son has a milk / soy allergy and was on nutramigen formula until he was 2 years old. He then was able to start drinking soy milk. (The soy allegy had reduced.)

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Elizabeth - posted on 01/07/2009

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Neocate is what our baby is on too.  Very Very expensive, around 40 dollars a can but it is mostly for kids with short guts, or SBS.  Mostly fat  alabsorbtion problems.  To order go to orderneocate.com  Enfamil makes something similar which might work called Pregestimil which is sometimes found at the grocery store and is only around twenty-six dollars a can.  Good Luck! 

Sydney - posted on 01/07/2009

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Quoting Kim:

What kind of symptoms did you guys experience to know that it was a milk allergy? They also have my son on Zantac cause the first said reflux but he hasn't really but a spitter upper just very uncomfortable with feedings.



My first was the same way  - not spitty - but had terrible reflux anyway. Turned blue in her carseat choking on her own reflux. VERY scary. Zantac didn't do beans. Ask your provider for a PPI (like Prilosec or Prevacid) - they are much more effective.



My second had a  very clear milk allergy (was not tolerating breast milk at all). Lots of screaming at night esp., poopy diapers w/ every pants change, and then bloody diapers. Quit nursing ( very sad) and started her on Alimentum. Totally new kid! She's about 9 months old now and is on siy and doing fine - think she's outgrowing it.

Sydney - posted on 01/07/2009

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Quoting Kim:

What kind of symptoms did you guys experience to know that it was a milk allergy? They also have my son on Zantac cause the first said reflux but he hasn't really but a spitter upper just very uncomfortable with feedings.



My first was the same way  - not spitty - but had terrible reflux anyway. Turned blue in her carseat choking on her own reflux. VERY scary. Zantac didn't do beans. Ask your provider for a PPI (like Prilosec or Prevacid) - they are much more effective.



My second had a  very clear milk allergy (was not tolerating breast milk at all). Lots of screaming at night esp., poopy diapers w/ every pants change, and then bloody diapers. Quit nursing ( very sad) and started her on Alimentum. Totally new kid! She's about 9 months old now and is on siy and doing fine - think she's outgrowing it.

Michaun - posted on 01/07/2009

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both of my babies have had that problem.  for my 1st child we had to use a formula called alimentum by similac.  helped tremendously!!  my 2nd child was able to use a soy formula, and that worked too.  hope you can find one that works well for your baby.  its a hard thing for a mom to have to deal with!! 

Melissa - posted on 01/06/2009

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Quoting Stephanie:

milk allergy?

anyone else out there with a baby who has trouble breaking down milk protiens and has to use elecare formula?


 

Jaclyn - posted on 01/06/2009

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My daughter (now 2) went through too many formulas and diagnosis to count regarding milk allergies, milk intolerances, etc. We used (and still do) Nutramigen formula. I have never heard of Elecare though... Now at 2 years old she is eating milk products like cheese and yogurt without a problem but still having tummy troubles regarding whole cow's milk. She is now so accustomed to the TERRIBLE taste of the Nutramigen that she doesn't like any other formula and we are forced to continue buying it to supplement her nutritionally.

Shannon - posted on 01/06/2009

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My kids both had troubles with formulas as well... I couldn't do the soy formulas though because I am highly allergic to soy... so even inhaling the smell of it made me violently ill... and I do nurse, so they both only get/got formula while I was at work... soy didn't sit well with them either anyway. We did the Similac hypoallergenic one with my daughter... she REFUSED to drink it!! And ohh the smell.... we switched to Good Start with the broken down proteins, and she did fine... my son, when he does get formula now, he only gets the Good Start with Natural Cultures... and has done wonderfully since he started on it. Good luck!

[deleted account]

YES! My son has the same issue. I put him on Alimentum which is hypo allergenic formula by similac. After his rash cleared my pediatrician recommended trying soy because the other was soooooo expensive. The soy is working great for Henry and he is now 4 months!

Sunita - posted on 01/06/2009

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Quoting Stephanie:

milk allergy?

anyone else out there with a baby who has trouble breaking down milk protiens and has to use elecare formula?


yes my son had allergy to milk proteins (which we found out when he was 5 months old and started on formula milk) and he was on Neocate - a hypoallergenic formula until he turned 18 months and outgrew the allergy. He was also allergic to soy so we could not try soymilk either..now he is 2 years 5 months and has been drinking organic whole milk for a while. here is more info on Neocate -



http://www.neocate.com/aaa_neocate/1128-...

Sharon - posted on 01/05/2009

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My son is 2 1/2 months old and I was starting him on a bottle a day of the good start formula and then after a few weeks went up to 2 bottles a day because I am not able to pump enough breast milk to make a bottle. He would be fussy after a bottle and sometimes spit up quite a bit when he burped. He became very constipated which just caused him to be more fussy anytime he ate. I have not talked to my doctor because it's way to hard to get an appointment with him, so I am not positive that it's a milk allergy. (I live in Ontario Canada where we have a shortage of doctors.) I google everything though and some of the symptoms were the same. It even said that a milk allergy can show through dryness of the skin on the forehead. My son had that as well. I was thinking it was his cradle cap. I recently switched formulas to a soy based one called Isomil. It seems to be better in most ways. He doesn't fuss anymore and the dryness on his forhead is better, but he is still constipated due to the extra iron in the formula. Does anyone have suggestions on constipation for babies this age?

Elizabeth - posted on 01/05/2009

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We found out at about 8 weeks that our son had a milk and soy allergy. He is on Alimentum and the doctor prescribed it as a prescription and we get it for free through our insurance company. It is worth checking out. Good luck.

Amy - posted on 01/05/2009

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My oldest Daughter was put on Nutramigen LIPIL and it was the only formula she could take and we tried them all she has since outgrown her alergy to milk so I would try that formula it is pricy like you were told but it is worth it there is a reason why some call it liquid gold lol

Tera - posted on 01/05/2009

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Have you looked into drinking goat milk instead? My daughter, now 5, has been drinking goat milk since she was one because of horrible GI problems that she had when we introduced her to formula at 6 months old. We tried all of the different formulas and nothing suited. But I found out later from my doc that goat milk is actually safe to give to babies under a year unlike whole milk. You have to diligently watch though because if your baby has problems breaking down milk proteins it could apply to all animal milks.

Barbara - posted on 01/05/2009

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Amen to taking notes. My oldest daughter was allergic to milk. We finally found out at 6 weeks of age after 6 weeks of projectile vomiting. She developed pneumonia which lead to some tests. She was put on soy as well and it took several different formulas before we finally found one that she tolerated. So definitely take notes about everything and take to your pediatrician with you. Good luck and may God bless and keep you and yours.

Melanie - posted on 01/05/2009

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I have a dairy allergy which i have pretty much outgrown but sometimes it flares up, my daughter who i breast feed has also got it i think as when i eat dairy she gets very mucusy and has mucas in her bowel motions, i drink soy milk when i can. I live in New Zealand and available here is Lordells Lactose free milk. It taste pretty much the same as regular cows milk and is a great alternative.

Jennifer - posted on 01/05/2009

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My daughter has a milk allergy and colic. We started using Nutramigen LIPIL and she is a totally different baby. After spending tons of money on this formula we were told that the Good Start has broken down proteins. We tried the Good Start Supreme w/ natural cultures and she does just fine on it.

Heather - posted on 01/05/2009

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Have to use Nutramigen...just started him on probiotics, it is supposed to help. Both soy and goat milk are not supposed to be good for the baby. If they are allergic to CMP then they can be allergic to soy and goat protein is very similar to cow protein. Best to go to hypoallergenic formula. It is expensive, but worth the money not to have to hear them scream in pain

Donna - posted on 01/05/2009

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our second baby boy had trouble...we switched to soy milk, it really helped also with his allergies...he is 5 now and only drinks Silk Vanilla Soy, he loves it. Our first used Isomeal (sp?) it smells terrible, but it helped : )

Terri - posted on 01/05/2009

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My son, who is now 7 was on Nutrimagin (SP). It was the only formula that he could tolerate. It was very expensive but it was worth the cost. The DR. said he had relfux and had him different meds that did not seem to help. If I were you I would get a 2nd opinion on the reflux.

[deleted account]

My daughter is four and when she was an infant went through all the things that you all have been describing, changing formulas and using Zantac....none of it worked. The doctors just thought she was fussy. It wasn't until she was off of formula and on regular milk that she started having issues with BM's and my concerns grew...I didn't feel like anyone was concerned but my husband and I and I just kept taking her to the doctor and after some testing (finally), she was diagnosed with milk protien allergies. I have put her on rice milk and taken her off of all products (to the best of my ability) and have seen huge changes in her attitude and her ability to use the bathroom.

Cara - posted on 01/05/2009

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WHEN MY DAUGHTER WAS BORN WE SWITCHED HER FORMULA 3 TIMES AND AT A YR OLD WHEN SHE WENT TO MILK WE SWITCHED THAT 3 TIMES ALSO, I TOLD MY DAUGHTERS DOCTOR THAT I THOUGHT SHE HAD A MILK ALLERGY CUZ SHE ALSO HAS BOWEL MOVEMENT PROBLEMS AND WAS VERY FUSSY. FINALLY RIGHT AFTER MY DAUGHTERS 2ND BIRTHDAY AND AFTER LIKE 4 DOCTORS I FOUND ONE THAT SENT ME TO HAVE HER TESTED AND SHE IS, WELL I JUST GIVE HER JUICE AND WATER UNLESS SHE REALLY WANTS MILK THEN I GIVE HER THE CHEWABLE LACTAIDS BEFORE I GIVE HER DAIRY PRODUCTS EVEN THOUGH ITS MORE MILK THEN ANYTHING ELSE. SHE WAS ON SIMILAC NUTRAMIGIN AND IT WAS A LIL BETTER FOR HER BUT SHE STILL HAD HER BOWEL PROBLEMS AND SUMTIMES WAS A LIL FUSSY BUT NOT AS BAD AS SHE WAS IN THE BEGINNING. I HOPE U FIND ONE OF OURS HELP TO U AND URS

User - posted on 01/05/2009

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my son is 4 now but yes, he was allergic to milk. at 7 weeks i had him at a GI dr. and on zantac and alimentum formula. he tolerated it, but it does have like 2% milk protein in it. elecare is completely milk protein free. we used the toddler drink elecare makes once he lost his bottle, to supplement his diet. he was allergy tested at 11 months and scored a 3 out of 6 for casein and whey (milk proteins) we avoided it for a year or so, and introduced baked dairy (crackers, breads, etc) over time and he tolerated that...then he started having bits of ice cream and cheese. at 4, he still hasn't had a glass of milk, but we get calcium elsewhere... good luck! it's a tough road at first until you get a handle on it...

Kim - posted on 01/05/2009

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What kind of symptoms did you guys experience to know that it was a milk allergy? They also have my son on Zantac cause the first said reflux but he hasn't really but a spitter upper just very uncomfortable with feedings.

Cali - posted on 01/05/2009

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My son was allergic to milk. He's 3 now so I don't remember the exact name of the formula. Something like Neo... something. It wasn't milk, it wasn't soy - it was like synthetic or something like that..... It was REALLY expensive, I do remember that! He did mostly outgrow it.

Kim - posted on 01/05/2009

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I have a 6 week old who has been very fussy and seeming like he is in pain during and after his feedings. We have switched a couple of different formulas and now are using similac alimentum....what is elecare?

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