My 20 month old son won't grow

Lindsey - posted on 12/22/2013 ( no moms have responded yet )




My 20 month old son has always been tiny, but hasn't grown in 4 months. He weighs 18 lbs and wears 6-9 month clothing. We have been seeing his doctor for this since he was 6 months old. He isn't even on the growth chart anymore. He was born only 3 weeks early and weighed 5.9. He has never been interested in eating. Even when he was born he almost couldn't leave because he wouldn't drink a full ounce. He has been tested for many things- cystic fibrosis, celiac, absorption and EEG disorders, thyroid, pituitary, parasitic, etc. He's even had an endoscopy to see if there were issues on his insides. Right now he survives on pediasure, and they have switched it to the prescription strength which is 1.5 times as much calories. He drinks about 22 ounces of that a day. He's been to speech for an oral evaluation to see if his mouth- eating, chewing etc. was not correct but it seemed normal to them. At the advice of a nutritionist and dietician working with our GI doc, we give him as much as he wants, whatever he'll eat at any time and he still could care less. Cookies, cheese, poptarts, cheese puffs- things normal kids would devour he might eat 1 bite of. And before you judge, I have tried all of the healthy high fat options and good for you foods too- fruits, veggies, hummus, avocado etc- he wants NOTHING. I guess I'm just at a breaking point. Half of me wants them to find something wrong so we at least have some answers and hopefully can treat him, but I'm terrified they'll find something bad. The other half wants him to be a perfectly healthy little boy who's just tiny, but if that's the case, I'm already worrying about him being bullied and teased when he is older. He is so smart. Is almost talking in sentences at only 20 months. Can recognize letters and say them. Just a very bright, happy wonderful child.

On a side note, I also have a 3 month old daughter who is in the 57th % at 13lbs. They are only 5 lbs apart!

Please help me if you've been in this situation or know someone who has. Thanks so much. Lindsey

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