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My baby Probably has NF1. Anyone else LO have NF?

Meg - posted on 01/07/2015 ( no moms have responded yet )

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My 4 month old is waiting for genetics testing to confirm that he has NF1, neurofibromitosis. It's beyond terrifying despite that I've educated myself well on the subject. Are there any moms with children who have NF or specifically NF1? Looking to discuss thanks ... Meg in Canada.

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