My granddaughter was diagnosed with Agenesis of the Corpus Callosum

Frances - posted on 07/19/2015 ( no moms have responded yet )




My granddaughter is a premie born at 28 weeks and weighing 1lb 15oz,She has been in the Nic unit since birth and has made much progress.She is now 2 months old weighing
5 lbs and getting ready to be sent home.She had a MRI on Friday and although she is doing good they found that she is missing the corpus callosum which is what divides the right and left hemisphere of her brain. Has anyone had a baby with this, I can use so some help. My daughter is going crazy and do not know what to say to calm even though I have read as much as possible on her condition, still trying to look for answers. Thank you for your help

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