My son was diagnosed with hemimegalencephaly

Um - posted on 08/21/2016 ( no moms have responded yet )




Hi Moms. My 10 months son was diagnosed with hemimegalencephaly last month. Everything was normal during pregnancy and delvery. I started to notice when he completed 5 months that his neck is not supported .the we started the hospitals journey. We did MRI where it showed the his left brain hemisphere is smaller than the right one. the consultants told us the only way to treat him is the physiotherapy and a medicine to prevent convulsions. He completed 10 months now with very slow improvements. His neck is not supported yet, he cannot set and standup. He recognized his family members , smiles and laugh and interact with his sister. We thought about stem cell treatment but not decided yet. Im searching for mothers with similar case. To discuss and share experiences .

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