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Pyloric Stenosis

Cheryl - posted on 11/07/2009 ( 4 moms have responded )




When my son was born we thought he was just a lazy eater because he wasn't interested in eating much. When we got him home he started throwing up. It would come out of his nose and mouth when he threw up. We were taking him to doctor every week! The doctor took him to get an ultrasound of his stomach to verify if he had pyloric stenosis but it wasn't showing up yet. So the doctor just took him off of my breast milk and put him on formula. When his vomiting increased and his weight dropped into the 12 percentile, the doctor said to put rice in his formula. Then when he was 4 weeks old, one night EVERYTHING he ate came back up and he dry heaved for 3 hours. So when the clinic opened on a Saturday morning we were the first patients. A different doctor was on duty that morning and she took one look at my son and admitted us into the hospital because he was deeply dehydrated and lethargic. In the hospital they did another ultrasound of his stomach and found out he did have Pyloric Stenosis. He went into surgery that day but the surgeon cut too far and nicked his stomach. He had to wait for 48 hours before he could eat again because they had to see if had healed. After 48 hours they still found a leak so we had to wait another 48 hours. After that they did another test on him but they couldn't tell if it was still leaking so they decided to transfer us to a children's hospital. At the children's hospital they started feeding him immediately and he did wonderfully!! We spent a total of 8 days in the hospitals. When he was released he was 5 weeks old and he still wasn't at his birth weight. Now he is 8 weeks old and gaining almost a pound a week!! So here is my question..Has anyone's child been diagnosed with this condition? Please tell me your story. Did you child have any later development challenges? Any later complications?


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Charlotte - posted on 04/05/2011




my daughter had the surgery at 2 months, 6 years ago. She had it from 4 weeks on, the doctors never caught it. They just kept changing her formula. She was 9lbs 8oz at 2 months, she weighed 7lbs 11ozs at birth. I called the pediatrician the day before her surgery. He told me to give her pedalyte, that she was just sick. When she vomited that up, I took her to the emergency room, All Children's Hospital said that they didn't think she had it, because she was too old and second born girl. They did an ultrasound and found it order surgery for next day. That night in the hospital she was vomiting up the lining of her stomach. She stayed in the hospital for 6 days and was on 3 medications for 3 months, because her stomach was raw inside for having it so long. No one else has this in our family. She is a healthy 6 year old now, all she has is two little marks on each side of her stomach and her belly button is an inny/outie.

Erica - posted on 11/07/2009




i have twin boys (jacob and elijah)... one of my boys (Elijah) had the piloriplasty (where they cut the piloris open more, like your child) he also had a hiatal hernia caused from swelling at birth, a mal-rotated intestine repaired, his appendix taken out, and a g-tube placed in his stomach... both of my boys were in the hospital for 2 months, and have been out now for 7 months. Elijah is doing GREAT... no problems at all from the surgery. all they do is open it up to where it should be. he is on the same eating schedule as his twin and they eat the same amount. now, Jacob is having problems digesting and he had an upper GI scan yesterday. believe me, the one that had all the surgeries is a happier, healthier baby. we have run into no problems so far. i hope this helped answer a few of your questions.

Shannon - posted on 11/07/2009




yep mine was when he was tiny like that and he's now 6. only thing he has no is ADHD and that's more cause of me then the surgery. we had absolutely no complecations and he gained the weight back and managed to keep up with all the developmental mile stones from then on. good luck.

Suzanne - posted on 11/07/2009




Poor little guy. I'm glad to hear he is doing well now.

My husband had pyloric stenosis when he was a baby and he is a happy, healthy adult with no complications or other related problems.

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