Robin - posted on 10/24/2009 ( 8 moms have responded )
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My 10yr old son started to pass blood in his urine about 6 months ago. When we took him to the ER, he had a UTI, was given antibiotics, and we were told to contact his ped. We did, and subsequently have been referred to a pediatric urologist, It has been during the past 4 months while being treated by the urologist, that my son has continued to pass blood in his urine on a "cycle". About once a week he passes blood and mucus in his urine for a day or two....it is accompanied by abdominal pain, mostly on the right side. He has had CT scans, MRI's, ultrasounds, high contrast CAt scans, cystoscopy, ureteoscopy, laproscopic surgery, and abdominal surgery where they removed what they thought was a urachal cyst. Nothing has located the problem....he continues to have painful "attacks", and repeated bacterial infections. Has anyone out there ever had or heard of anyone having a child with these kind of symptoms??
I am at my wits end, and the Dr's don't seem to know what to do next. My son needs help.
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Robin - posted on 10/25/2009
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Thanks Jodi, and yes kidney stones was the first diagnosis. We did a 24hr urine collection, and there was a slightly elevated calcium crystalite count. They put him on diuretic medication,as well as one to strip the calcium, and we changed his diet to one with no calcium oxcylite. The attacks continued to happen, become more frequent, and more painful. The CT scans, ultrasounds,and MRI's showed no signs of stones, so they went in to take a look. When they were finally able to get to the kidney after 5 attempts (cystoscopies, and ureteroscopies) there was nothing there. That ruled out kidney stones :-( It would have been a very managable cause, so as painful as they are, I wish that was what it was.......at least we would know.
Robin - posted on 10/24/2009
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Thank you Laura, his name is Matthew.