tetralogy of fallot with pulmonary atresia

Elaine - posted on 03/05/2015 ( no moms have responded yet )




My little granddaughter is due to be born on the 16th of May , we know she has tetralogy of fallot with pulmonary atresia but are yet unsure if she also has Digeorge syndrome .this is My daughters only child and she is loved and so wanted and no matter what problems she faces we will all be there standing strong beside my daughter and her partner , i am afraid of what this means for the little one and tho i have searched the internet im not sure what to belive. I dont want to burden my daughter with my fears as she is trying so hard to be positive but when i get a moment to myself i cry in secret , does anyone know anything that can help me come to terms with all of this and help inform me about this condition x

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