Twins with developmental delay

Mariza - posted on 12/03/2010 ( 2 moms have responded )




I have a set of twins that were born at 29 wks. During the pregnancy, they were diagnosed with twin to twin transfusion. Now they are in special ed. kindergarten. They have developmental delay. They were also diagnosed with craniosynostosis, one twin had to have cranial reconstuction.One of the twins also has a heart condition (mitral stenosis) They also have ADHD. They are also not potty trained. They also has sensory issues. They do participate in OT,PT and speech therapies.
Was wondering if anyone was going thru something similar, and any info would be very helpful.
thank you


View replies by

JuLeah - posted on 12/03/2010




Odds are that at this point you know as much as the professionals. In some cases, more as you know your children best.
Keep doing what you are doing. Maybe try teaching them sign. Pay attention to their diet. Odds are their bodys are less able then most to filter out toxins (HFCS, Trans Fats, Sugar) So, keep 'em off processsed stuff.

It sounds tough, your shoes, but keep at it. The better then intervention on this end, the less they will need as young adults.

~Jennifer - posted on 12/03/2010




I don't have twins, but I do have a son with Cerebral palsy, SPD and Autism. The best thing you can do is to keep them in therapy - through the school, through SSDI (Disability) if you have that available to you where you are, and through CONSTANT reinforcement.
My son is almost 6 and JUST became potty trained, still doesn't speak THAT much, and still has a host of issues.......we're working on it.

I would suggest trying to teach basic sign language for help with communication - it was a huge asset to us when we started with our son. He was able to communicate and even started using his words more often after we began basic signing.
I recommend "Signing Time" videos / dvds...they were a major breakthrough in our son's ability to might be worth a try.
My best to you.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms